Wednesday, August 19, 2009

It Takes a Village to Preserve the Dignity of our Elders

I was involved in home care with a couple of different agencies for two and a half years. It can be a real eye-opener seeing how people cope, or don't, with their limitations and limited resources.

I was sent in to evaluate and draw blood work on a gentleman who was was very frail and malnourished. He was absolutely selfless in his care of his wife who had suffered a stroke. He lifted her in and out of bed into her wheelchair, did the cooking and his home was filled to excess with piles of clean laundry and bags of trash. He really needed help but he did have some interesting ways of getting things done. I enjoyed how he used his pliers and other handyman tools to cut up medication for his wife. It was not so amusing to see what kinds of food they were eating and it was a struggle to get him to accept care for himself. He constantly tried to get me to do things for his wife instead of him.

Families can be the reason the sick, disabled or elderly person lives well or struggles. I took care of a gentleman who was unable to go up and down stairs without a valiant effort and a lot of help from his sons. He was "trapped" in an apartment over a garage. In the winter ice would freeze up the stairs and it was a dangerous climb to get to him. His family was slowly remodeling the "basement" area of this structure so he could live down there and be a little more able to get out and do for himself. They were good kids! Unfortunately he died before the work was done. :^(

In the same neighborhood I had another patient who was very very fragile. He was a 92 year old widower living alone. Every day I would go into his home and find him with new skin tears, bumps and bruises. He got meals on wheels and split the food between lunch and dinner and that was about the only part of his situation that "worked." He had four grown children, some of whom lived in the same town, and they did not visit or help out. The furnishings and decor were from the seventies. Even the dust was from the seventies.

I found him one day making out his bills and discovered that it took him hours to write a couple of checks to pay bills. He had trouble seeing and holding a pen but somehow managed. He struggled to read the small print on his bills and it was just such a sad thing. I wondered why someone didn't come by and do this chore for him once a month. There were doorstops on the floor to trip over, too heavy for me to lift and I finally picked up on the fact that when he sat on the side of his bed in the morning he slid right out onto the floor.

Every time I visited him I had to call his doctor, write orders for antibiotics and bandages and call his family. There was never a visit that didn't include a patch up job. Eventually we had to discharge him from home care, with the cooperation of his doctor, because his children had decided they didn't need to help out because "he has a nurse." These home visits are typically from half an hour to an hour, more in an emergency but certainly not a substitute for a caregiver. Sometimes, much as you hate it, you have to discharge a patient from home care because you are "perpetuating an unsafe situation."

Much of our society has become very independent and interdependence is eschewed as being too much trouble, not any fun or interfering with the privacy of the more able bodied people in the extended family. I have heard people say "I have my own family to take care of," and not think another word about it. I fume because I imagine that these parents did selfless things for their children like keep them alive until they could care for themselves....... that's a rant for another time.

Cliche, maybe but it does take a village....... to preserve the dignity of our elders.

6 comments:

  1. I read your blog with interest as I had to deal with a situation in my family in which my Uncles refused to work out other options in the care of my 90 year old grandmother. One uncle stated quite staunchly, "I am retired, I have my own life to live!" Had I heard him say it personally, I would have called him up on it, reminding him that my grandmother brought him into this world, nursed him and provided for him until he was on his own. I don't "get" this blatent disrespect for our Elderly. Now my grandmother is depressed in a nursing home that I don't get to visit very often due to the distance. If I had a house, my grandmother would have lived with me. No questions asked. I guess what you wrote and what I've experienced has me wanting to get into Elder law. I have a soft spot for the elderly. Such a treasure trove of wisdom! Thanks for speaking up and sharing your experiences. I wish more people would wake up and realize our 'forgotten' part of our population.

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  2. I know many selfish people who think this way. Makes me angry and it makes me sad. My dad died in 1990 but he rescued my grandma from a nursing home. She did well in her own apartment with supervision. Even started knitting and crocheting a little when she could. Might not seem like much but it was important to him and her. :^)

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  3. Working for many years as a clinical case manager for disabled and elderly individuals with several agencies, I encountered many of the situations you speak about. Case management is an absolute necessity for these individuals because in many cases, family is missing or dysfunctional. My job was to put into place nursing services, housekeeping, etc for these people. Many of the nurses I placed were instrumental in helping me document the issues that precluded safe home care. I found that some of them felt very impotent without a case manager's involvement. A lot of people lie to the doctor and the nurse about the help they have, what they eat, their resources, but the nice lady that came in to ask how they liked their services, and their caregivers got told lots of things the medical professionals didn't. Doctors are very hit or miss with ordering case management. Family is usually seeking help or a nurse has recommended case management. Nurses who do home care are rare and in many cases wonderful advocates.

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  4. Ugh, that was my post above, Sherry. I thought I had it so my profile would show!!

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  5. I Just deleted my whole damn post!!! ARG!!!

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  6. Do you need the copy that came to my email?

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